*New Readers Welcome! I recommend that you begin in October of 2021 to get to know Rock and Lm who pop in and out of my blog.Thank you
As followers of Lm’s journey through pain, both physical, mental and emotional you know by now she can be just one badass cocktail away from going astray. Rock has been summoned from his solitary berth to once again tail her, resurrect the fight within and teach her to trust her instincts and eventually others. The walls have been re-sealed in her dank, dark stairwell and Rock has kept the key to all the drawers aligned with every jagged step for sixty years. She has stolen the key in the past and reopened little boxes with big, ugly memories and he has had to talk her back to the present. Lm has been doing fairly well, working to grow stronger physically and clinging to the belief that she will beat the pain, outrun it, throw it over a cliff maybe. It’s still very much part of her and Rock knows when to step up his game. Diagnosis #1, Chronic Post Traumatic Stress Disorder often leads her to vivid and complex nightmares and she recently finished watching “How To Get Away with Murder” on Netflix; it starred and was produced by an American Actress, Viola Davis. Never had Lm connected with a woman as strongly as she has with the character “Anna Mae”, also known as “Annalise Keating”, a powerful attorney and professor of law who is cracked, just like Lm. Anna Mae reverted to her little self often, crawling within to comfort her inner child; she’d be all snotty nosed with her big brown eyes bloated from salt water tears and curl up in her bed for days. Despite these episodes wrought with mental and emotional struggles, her character carried her flashbacks around with her daily with a fierceness that sometimes spiraled out of control. When times got tough “Annalise” could be mean as hell yet so loveable that Lm wanted to jump into the series and hug her when her little Anna Mae’s real self revealed it was savagely broken, not once but repeatedly, just like Lm’s true stories. In real life, the actress experienced great trauma and triumph and was interviewed by Oprah Winfrey about her life and a book she has written. In the interview, which takes place in Hawaii her hair was soft and curly, her arms strong and her smile and appearance impeccable. Just like Lm she carries her own stories around with her, has tried to share them with the world to help others and hopefully herself. The moment Lm believes she has healed from the relentlessly depressing traumas from her own life they pop out like a deer jumping across the road in front of a car, the driver and deer are both startled for a moment, then grateful they dodged a would be tragedy, they both continue on slightly shaken. Rock propels Lm to read about CPTSD and to be an advocate for mental health and she sometimes actually feels under control, shouting at Rock to get off her damn back because she doesn’t need his stonefaced stare. Lm wishes Oprah would read her blog or her one published fictional book, “Tea With Nanny”. She obviously doubts Oprah will surf through self published authors on Amazon and discover her but allows herself the room to dream big some days. Diagnosis #2 Chronic Repetitive Pain Syndrome or CRPS. This is the second ingredient to her badass cocktail recipe. After two decades of intense pain stemming from an inherited degenerative disc disease, (DDD) severe osteo-arthritis coupled with Diagnosis #3, Fibromyalgia Lm’s body just stopped cooperating. It has been through so many tests, met with so many doctors and specialists from A2Z that hope begin to flail about like a freshly caught trout on a rock struggling to breathe. She tried to stay busy in her impaired bodily image, practiced mindfulness, meditation, prayers to various all knowing visionaries, wrote,drew, and had many penpals.From not moving enough and fearing the excruciating pain that moving often led to, her muscles began to spasm, her entire life became overtaken with dis-ease. Years of prednisolone have caused her to be cortisol dependent leaving her weaker than she has ever felt at times. After her stay at Uppsala University Pain Rehabilitation Clinic in Sweden she began to feel possessed by positivity. It was like a week of “Ted Talks” and a retreat that kicked her out of bed each day with tough challenges not just physical but mental and emotional. This reset Lm’s self image on a high that lasted what seems like forever but in reality it’s been a slow three and a half months since she came home. Here is where the badass cocktail blew up in her face, Rock resurfaced dutifully and she is back to the, “I can’t do it” stage. After many mornings doing yoga-lite with a Swedish television celebrity health guru,“Yoga med Sofia”, trying to walk 20 minutes or more at least three times a week and watching her weight go down, the FIBRO bomb dropped out of nowhere. The one diagnosis she can’t shake, hates due to it’s social stigma, a disease poisoned by wicked disbelievers, one drowning in controversy and for reasons still unknown, it changes one’s life forever. Lm’s kind of fatigue is the type that can’t be overcome by splashing cold water on your face or drinking twelve cups of strong coffee, it is invincible. The pain that morphine barely breaches, the depression of losing the fight, over and over again bleeds the mind dry. All the progress Lm has made to create the image of a better self just floated away. Glued to the sofa, too weak to bathe or care increases depression. The brain fog from her pain is cluttering her mind to the point that words lose meaning and writing them down has almost become impossible. Her blog and her poetry and short stories suffer,too. Her creative self is swallowed and regurgitated repeatedly. Rock alas kicked her to call on her Dr. who upped Lm’s cortisol as she’s been dragging and very short of breath. What does all this mean? What is the point of writing about any of this? We know Lm is a fighter, stronger than her worst self, and Rock will hold onto her so she can get back on her saddle. Knowing she can’t escape or hide from any of these diagnosis makes her weary and she slides down a few steps and Rock always leads her slowly, ever so gently back to the light under the doorway that leads her into clarity. The crack remains, no matter how many times Rock has plastered over it,he knows it’s an ongoing project,just like Lm.
wow sounds too real, sorry for the pain and ongoing strain … loved your poem about usa! Sounds like you are both doing it tough, hang in there … you are here for a reason. Go into the pain to come out.
My lowest disc exploded after a second fall cutting both sciatic nerves. Was wasted waist down, completely crippled and in agony. The surgeon plucked bits of disc out of the nerves but said it was so shattered he couldn’t collect them all. 12 years of dragging my left leg, lifting it up steps, gutters … then the lameness and pain lifted. There are miracles praying you find one 🙂
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Thank you for share your experience with me. It truly is my biggest challenge and has given me strength I never knew I had. Peace 🕊️
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