All Aboard; It’s the Pain Train

Photo by Alvaro Matzumura on Pexels.com

All aboard! It’s the Pain Train. My seat is permanent, my choices are few and I can’t go to the bar car, the toilet or be around others without making a huge fuss, therefore I choose to stay in my assigned seat. No one can help me; I own this pain. Looking out the window the world flies past and life is taking off at a speed I can’t cope with. The conductor is my nervous system colliding with my brain’s reactions to every tiny bit of stimulus. I see you and I care but I am off track and my brain signals are traveling at such a rate that I do not understand the smallest of conversations or even my own thoughts. This is not the train anyone with any healthy lifestyle wants to board; but it is packed. People are laying in the aisles and hoping for assistance, recognition and acceptance. Chronic Pain Syndrome or CPS is an official diagnosis now by WHO, (no not the band) , rather the World Health Organization. I was recently diagnosed with a severe form that has caused me to lose my vocabulary, shortened my fuses so to speak causing me to be easily startled, reacting with a scream or even sobbing as if the whole world is ending. In some ways, on some days, it actually does feel like a hopeless battle to live this life and ride this train. I have a collision of diagnosis. Degenerative Disc Disease, an inherited condition that I’ve known of since I was in my twenties turned from a back ache after gardening into the most severe form fast in my late forties. At that time I was given 20mg patches of morphine that I changed every few days. I believed this was as bad as it could get then. Yet, I was swimming, walking and riding my bicycle still. I also was cooking which I love to do. From there I slowly began to develop boney growths jutting inward toward my throat and spinal cord and I was told I had unfortunatly signs of early onset osteoporosis. I was put on a bone mineral supplement and more vitamin D and calcium was prescribed. Can’t get worse than this I thought, until it did. A spinal specialist said there was nothing that could be done. I not only have scoliosis, but also severe arthritis and various deformations head to toe. Earlier I had been sent to a university hospital rheumatologist who diagnosed me with fibromyagia, something I would not accept or grasp until I had the most severe flare I have ever had recenty. ( I am recooping now yet have a lot of work to be steadily on my feet again). The Dr.’s who upped the morphine years ago are unable to treat me now. I will say it barely takes the edge off on 30mgs daily slow release which includes fast acting oxynorm up to three times a day, muscle relaxants, anti-depressants, blah blah blah. The more boney growths, the worse my spine becomes. Earlier I was walking with a rolater and or crutches or a cane. Sitting was and remains one of my worst enemies but as I said, my seat is assigned for life. I then contracted covid in March of this year after three vaccinations; the very first time I went out into the city I caught it. I have not regained my strength, have developed chronic asthma and sleep as if in a coma or swing to the other extreme, experiencing severe insomnia and nothing will knock me out. My head hurts daily, I now have tinnitus and vision issues. The train chugs along and now I am in cue for a pain specialist rehabilitation hospital north of Stockholm. I never write about physical pain because I don’t know how to project the feeling with words so that others understand. I know that a really nice man, the husband of an American friend said the right thing one time years ago and it stuck with me. “Hello, it’s nice to see you are having what looks like a relatively good day”. It meant the world that someone knew my good days were fewer than my bad and that he also understood people like me don’t get better, we are chronically living in a state of pain that can ease up a bit but never leaves us completely blissful. For all the readers and writers out there who are living with CPS, I understand you now. I am sorry that I did not understand what my fellow passengers were experiencing until now. Mental health is important to address for everyone and somehow I let mine fall apart. Hopefully after my stay in the Pain Rehabilitation hospital (Uppsala University Hospital) I will be able to read with focus, write with more clarity, listen to others and converse, start walking for my overall health and socializing a bit more with those who have hung in there with me. I will still ride the train with you and I will try to reach out to all of you much more. Remember, you are not alone. We are on board together.

If Patty Smith Came to Dinner…

She would love the old farmhouse and joke about marijuana not being legal in Sweden. She would look at all of my art and feel something. I would have a hard time keeping up the conversation because of my fibromyalgia flare, non stop headaches and chronic pain syndrome. My spine wouldn’t let me cook her one of my famous soups so I would put out a nice bottle of red wine, lay fresh wild flowers by her glass and talk about how fucked up the world is and how we can’t do enough in our short lives to save it. I think I could manage to make a Västerbotten pie which is a Swedish favorite and saute kale, shredded cauliflower and sesame seeds with chili flakes and grill corn. I wonder if she likes caviar. My pain would overwhelm me and I would need extra morphine. I’d tell her how her Easter album changed me, made me feel less guilt and oppression internally from my Bible belt upbringing. I think she’d like me. Maybe I would touch her wild gray hair and talk to her about Bob Dylan and how he can’t be repeated, reincarnated and how many people idolize his ability to hit his listeners over the head with an iron skillet, while repeatedly trying to wake society up. I would serve sweet strawberries and cream and she wouldn’t care that I was in my pajamas because I hurt so much. She would probably not stay over and have ” a guy” that drives her around smoking camels in my driveway. She would hug me and I’d ask if we could take a selfie. She’d oblige and get into a black SUV with dark windows and slowly the driver would make it around the barn, past the silos and I would feel satisfied how well it all went and write a long journal entry. I would call my friends and they’d doubt me. I would have met a rockin’ icon and remember how she empowered all women to continue to stand and raise our community UP to higher ground.

Fallen Angel; Accepting I can not Fly Alone

In this show, on this stage, a giant yet fragile marionette is lowered slowly; as the black velvet curtains part one can see what appears to be an angel flying, sustaining herself with her own elegant wings; no one would surmise that she was not magical at all, nor that she was so delicate that any moment she could break into bits destroying the opening act. She was held together like all puppets with strings attached to, well every part of her. Above her was a monster both good and bad, one who could help her move and also yank her off stage without notice, ending her performance so swiftly that she lost her breath. The monster was made of a slew of chemicals, medicinal ones that gave her just enough energy to be amongst others and move. Some days the monster although well meaning didn’t move her at all. The monster called in her true protector, her friend since childhood with hopes he could guide her with the grief she swam in. Rock said, “other’s are also struggling to perform, to get out and do their best, to live with no strings attached. Some strings are superficial and some are real. You must learn to accept the monster made from the God’s as your friend to live a better life; Morpheus is the monster’s name.” Although Morpheus was powerful, some days even he was not enough. Some days Morpheus lifted her with ease and she glided across the stage, in flight with next to no pain and yet other times she lay in a wooden, splintered heap in her lonely marionette box. Her wings were her freedom. When she was flying she smiled and saw the world as a beautiful place despite it’s absurdities, when her wings ached and she couldn’t even flutter she sank deeper into her box and Morpheus would close her eyes awhile and there she would stay, dreaming of the old days when she flew and saw green tree tops with baby bird’s nests, lover’s hand in hand sitting on picnic blankets and all the colours on the spectrum called Life.

Read, Write, and True

oil on canvas/mixed media by ROCK

“Baby, don’t listen to the people who come to you and say, ” What you wanna be when you grow up?” ’cause they don’t know nothin’ ’bout our world”. That’s what Grandma said. Our country is a damned place, she says, it’s stolen. When people go and take other’s land, kidnap children from their soil and beat ’em, hang ’em, drag ’em behind they ole trucks laughin’ whiles we momma’s weepin’ they don’t get to ask you nothin’. Tall in they suits with those big white teeth smilin’ like they give a damn ’bout you. Naw. Naw. Keepin’ guns so they can be freer? That’s nonsense. See all that blood running ‘cross the front page? That’s our blood, too. They kids don’t get shot in the face. They rich and in charge. That’s the truth child, you try to stay alive and out of the way an they still come for ya. Makes me think why’s we born if we just all gonna get shot in the head, by police, gangs and the people say we got freedom, we are the best land, pledging allegiance to some heathens overcooked philosophy. Hell, Ben Franklin was right when he said the National bird should be a turkey. Can’t kill the vultures but we can slaughter indigenous people and eat from food lines. Giant cans of peanut butter, damn government cheese and those crackers get off ’cause they be mental, sick. Jesus Christ didn’t hang up on that cross for these nasty men. Granma’s in heaven and she knows what she’s talking about. She saw it all comin’. I wish I heard her when she said in my dreams “keep the babies home today”. Dear God, don’t bless America, bless those babies that went to school today. And now, Now what I really think is why, be true to the red, white and blue. Think Russian’s all evil when you’re serving the people this nauseating morning news same time Johnny Depp laughin’ ’bout Alpaca’s in a courtroom. America, you ain’t beautiful, you lost your damn minds.

Romancing Pain

Dancing with Eyes Closed; Accepting Pain as Part of Me.

In the morning there are yellow dandelions surrounding me, lifting me up with a wash of spring hope. I am rinsed in the sun’s warm rays and feel determined. I always think I will feel better than I actually do. Is that my own stupidity or perpetual stubbornness? I dress and make it to the rich Italian red wine sofa and prop my legs up on a stack of pillows. The pain starts just after I proclaim, “I am better!” and I succumb to my surroundings. The walls are a light gray panel of wood, the ceiling white, the old barn’s tin roof I can see from the sofa is a rusty burnt red with brown dried clumps of moss separating it into unsightly squares. My pain I feel is visualized as an electric zap of steel, sharp silver, shooting up my legs and my silent scream is a maze of terrestrial hues. Pain shares with me every drop of it’s colour, of it’s beauty and it’s sorrow; like the northern lights and milky way it is so breath taking and hard to believe that it is real. Living in a state of chronic pain is anxiety provoking. My mind is a puree of sounds and I am often perplexed. Why can’t I be fixed? Why must my colours be so rare and overworked? My self portrait is black and white as I spilt any hope of beauty out onto the porous surface beneath me. “My pain”, I said to the chronic pain psychologist, “I’ve accepted.” My mind lied that day. I hate it, I hate my body and my bruises both superficial and within. No amount of prayer or drugs give me peace and like the wild scribbling made by a toddler with crayons I lay in a chaos of colour; I am a bottle with layers of dripping wax from many different tints of candles. I am beneath the surface, beneath the beauty, buried in a colour of pain. My eyes close and I stare at the daylight as if my eyelids were window shades. I don’t see why I should open my eyes except to write this pathetic complaint that haunts me. I want to be a happy rainbow one more time. One more moment of brilliance is all I ask. Like any desperate lover, Pain beckons me back, takes hold of me and says, ” I will never leave you alone again.”

Not Forever; A Silent Viking’s View on God’s and Love

Soon he would say goodbye, doubtful his first taste of love would wait; boarding on the longship would begin at sunrise after two more nightfalls. He was not at ease nor feeling dutiful to set sail, his rough, calloused hands had been assigned to row, his grey eyes already set on defeat. In the chilly night he and his lover kept warm under a sheath of tanned hide; a warm fire encircled with stones lit up their faces. His lover was cold, she had been sweating earlier and she shared with him that perhaps she was carrying his baby. It had been two moons since her last cleansing. He held her close and rubbed her hands in his own. All night he stayed up, keeping the fire crackling and he called for a wise woman to look at his betrothed. He was given garlic for his neck and a tonic that tasted bitter as nettles to sip. He must prepare to board the longship and not fall ill. The woman wiped carefully with cool cloths the forehead and the nape of his lady’s neck and said she should be moved to the women’s tent so he too might rest. He was reluctant yet never questioned this miracle of her gifts from the God’s and believed in the sunrise of his departure his love would encircle him with the other strong women and sing a prayer to the heavens. At last he fell asleep and the fire dwindled. He was a large man, of long height with a wooly red beard; for years he had been called to help others lift heavy logs, roll stones and fell trees for boat building. His stomach grumbled and his dreams brought him no peace. His eyes closed, his mouth agape, a gurgling snore erupted. Deep within his dream state he saw his own mother, her pale white face, her eyes weary yet loving; she spoke. “Son of Gudrun, son of Ove, lift your spirit up to see. It’s been eighteen moons since we saw you. Your sister Ulla is here, too. Their faces were like a portrait in beautiful pastel inks. The heavens were soft as the first spring day when the sight of white and purple forest flowers burst through the edges of the footpath, gay as the laughter of friends when the sun was long in the sky, days were easier, their heart’s lightened by the dark winter’s end. Time for merriment and the smell of baking bread, the homecoming of the longship, strong fermented ales and hearty stews and loaves of bread with berries he could taste so sweet; stirred he woke with a gasp. One sunrise had come. He stood and walked to the women’s healing tent and the flaps were sewn shut with thick leather. “Naaaaay”, he screamed and he ran to the morning fire keepers boiling coffee and sharing porridge. Breathless, he asked if his lady was in the tent still. Blue eyes looked at one another and down. He knew the answer. He kicked the first iron pot and it swung from it’s iron chains molted flawlessly by the black smith and his apprentice. Hot scalding water splashed and the men jumped back. An old man who laid on sheep skin by the fire called for him to sit by him. His heart rapid, his cheeks red with rage, he succumbed to his elder. ” What can you say to comfort me?” The man, thin and weak voiced motioned for the giant, frightened man to sit beside him. “Are you the son of Gudrun and the sister of Ulla?” The old man already knew but asked even so. “Ya, I am.” Do you think, son of Ove that your father created such acts of arrogance when the God’s called his wife and daughter up?” Silence. “What name did they leave you?” “I am Per Ove’s son.”Well Per Ovesson do you dare to guess the will of the heavens? Are you in fear of the sea and hunger? Are you a messenger or do you serve?” ” I serve.” The so very big man, Per, son of Gudrun and Ove, brother of Ulla wept. The elderly man handed Per a smooth stone to rub and called for porridge. The big man, the thin elder and the fire keepers stood close. One by one they placed a hand on his shoulder and walked on. Night fell again and he laid by his fire alone sipping the bitter nettle tea. He did not want to dream and the silence soothed him. It had been nine cut logs when a woman he’d never seen came to stand before him. “You may see your lady now”. His lips felt numb, his eyes ashamed and he said, “Why do you want me to feel more pain?” The woman outstretched her hand and he stood. When they came closer to the tent the woman lifted the flap and there lay a clump of deep red flesh upon his lover’s abdomen. He moved closer and felt confused. Take the flesh and all of it’s blood and bury it deep in the forest. His lady did not breathe and small stones were on each eye. He did as told by the healer. Without sleep and it being soon the second sunrise he fought to keep focused on his task. Big tears from a big man with the heart of a child fell steadily down his face. When he returned he went to his fire to sleep and there sat the woman again with a white bundle of heavy fur. She stood and handed him a baby. “How can this be? My lady only missed two moons.” The woman smiled and said, “the God’s were good” and asked him to bestow a name before he sat sail. In a state of both sorrow and beauty he said, ” this is the son of Per, the son of Lea. He shall be blessed with the name of Liam.” The woman promised him the babe would be well fed and when he returned the baby would be his comfort. Per kissed his son’s forehead and slept with him in his arms until sunrise. The healers had prepared Lea’s body to be sent to sea where she would be taken up to the God’s quickly. He held one side of his love’s canvas and birch sewn raft. He did not weep for she had left him reason to believe that more would come to be good. The women sang as the longship prepared to launch. The sky was yellow and afire with sunrise. The horns blew and he pulled in unison with his mates. By sunset they placed Lea on her raft and she floated away from the boat, away from the father of Liam, the son of Ove, the son of Gudrun and the brother of Ulla. In the night the high waves plunged over the stern and wailed upon the starboard, the longship albeit strong rocked with brutal fervour. Per was the lead, each pull he thought of Liam, each horn he heard his mother calling. The God’s were trying his strength in a way he never had experienced, he was not only strong in his body now but also in his soul. The storm settled and he was sent to rest. A cool wind soothed his sweaty bruised hands and his lips cracked from the salty winds from the North Sea leaked sweet bits of blood. His thirst was mighty and he was given water with herbs to keep him quiet. His cough came on fast, deep and he heard other’s coughing, too. He spat green, thick phlegm into the sea. He hung his head over, the winds cooling his dizzying state. The head of the ship was also spewing a sickness from his body over board. Few men could guide the longship, and one by one they fell, coughing, wailing in pain, and now hope had no place for them. Another night would come, a morning with many deaths and each one was set free to float amongst the creatures that both fed on them and nourished their loved ones. Per Ovesson would be the last man to go. He ensured all were met by the God’s who knew better than he the true meaning. He would fall into a deep, long sleep, he would dream of Lea, mother of Liam and he would die proud as his father had bravely done before him. He drifted off further to sea and the sky above would open it’s arms and his soul would rise up, up, up into the arms of Ulla.

The Tale of a Broken Ballerina

                                                                           A Dancer's Weep
 

Handwoven lace, spun from a magical spider’s web fashioned her posture; veiled were her dreams, old lover’s deceptions and all unbridled emotions. Before, as if in another life she had been the lead dancer, the one spinning to pretty notes, unwinding with the delicacy of her spirit. Poised, she leapt through memories both shiny like sapphire and fragile as opals. Around her was a still, mirroring pond of light. She was a lost feather, floating solo from high above, performing an impromptu pirouette and free falling in the breath of cool northern winds. Her eyes were stained with glassy ice blue tears which solidified as soon as they breeched from their ducts. Snowflakes flew around her and she became cold, landing hard upon the marbled stone beneath her. She lay there and closed her eyes. She wanted someone to stop the tinkling of a rhetorical melody from her own music box which continued to play beyond her control. She had broken her strongest leg, the one she used to lean on when avoiding painful lyrics that reminded her of flurrying youth. Her shadow was growing old and her desire to dance more began to fade. No hand came to help her up and no one knew that she lay in pain; truth be told she did not long for help. The ballerina knew she was doing all she could to mend her wounds and protect her future from being shattered. From the heavens the moonlight crystalized her beauty, shielding her from surrendering herself all together. Her strength although enervated, would call upon her to rise again. As all folkloric sagas have us to believe “amore-propre” is restored and the beast within is slain or out-witted, the beautiful one’s faith is redeemed, and the Prima donna always experiences a reawakening with butterflies swimming around her head and that which was her nemesis is obliterated. The ballerina in this story is glued carefully back together and placed en-pointe, center stage in a polished oak jewelry box; the golden key is wound and she spins ever so slowly as Lara’s Song resumes. Somewhere my love, within this broken Ballerina her own needs were forsaken without mirth; to see those she loved resuscitate their own dreams was a gift for she once again had an honorable purpose.

One Person Can Flip Your World In a Direction You Never Saw Coming.

Photo by Mauru00edcio Mascaro on Pexels.com
  • Who changed your entire world on a dime?
  • Who made a difference that forever will echo a pivotal change in your thinking?
  • Who made you swear to never sink “that low”?
  • Why do other people’s experiences matter to you?
  • Why do we dance around the TRUTH to save someone’s feelings?
  • Is authenticity even capable of being achieved if you knowingly leave doubt in the air?
  • Can one truly change another person for the better, or is it just in the timing that we converge?
  • Is the Earth sufferring for the first time?
  • Is “man” innately selfish and blind?
  • If you had to choose between making yourself happy or your child’s life better what would you choose?
  • Do you think we are predestined in this life as we know it?
  • If you had to list your best qualities, what are they?
  • If you had to kill someone to save another could you?
  • Would you choose saving a thousand bottle nose dolphins or panda bears over having thousands of extra dollars a month to spend?
  • When you say “prioritize”, what exactly do you mean by that?
  • Can you accept TRUTH and still love the one who hurt your parent, child, sibling, or friend?
  • Would you prefer to be “left in the dark”, “turn the other cheek”, or “stay out of it” as a moral code of action if you found out bad things about one of your most beloved humans?
  • I, in the NOW, surmise that since ROCK has protected LittleMe for fifty – nine years, no one wants the TRUTH or the real story because it makes them feel guilty and messes with how they see the “family” as a whole. Lm is the Black Sheep because she stopped compromising. In the end will her TRUTH matter?
  • In one instance, a human being can cross your path and alter every single aspect of who you are and how you see the world. Am I that person or are you?